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The Beginning of the End of Grief

By Sheila Grinell December 08, 2023 Family

“How do you cook one and a half eggs?” my friend asked when I told her it was my favorite breakfast.

I replied, “It’s simple; you fry three eggs and cut one in two. Then you each eat one and a half, with one and a half pieces of toast if you like.”

“Ah,” she said, “you didn’t tell me it was breakfast for two. It wouldn’t work in my house.”

I looked at my friend, who was on her way to pick up a pizza for her son-in-law, and realized my recipe wouldn’t work for many women. You had to have an easy-going husband who prioritized your enjoyment over his convenience, like my Tom.

I Lost Tom in 2022

After my husband died, I moved into a condo to pursue my new life. I recently threw a housewarming party to which 50 people from different parts of my acquaintance came. I hugged each one, offered a drink, and ran off to welcome the next one. I was too busy hosting to converse, trusting my friends to find common ground with one another.

When it was all over, I sat down to my dinner of leftover cheese and crackers and realized I was exhausted. At past parties, Tom had done the welcoming and I had done the circulating. It hadn’t occurred to me that one person couldn’t handle both. Tom loved making people feel comfortable, but he would never undertake to organize a party himself. Like Jack Spratt and his wife, we made an efficient team.

The End of Teamwork

In the last decade of our marriage, Parkinson’s disease took over. Tom’s physical and cognitive abilities gradually declined until, in the final three years, spurred on by the pandemic, he wound up blind, wheelchair bound, and confused. In the beginning, I took him to see doctors and occupational therapists and to boxing, dancing, and singing lessons for people with Parkinson’s.

Towards the end, I moved us into housing with caregiver support and found technology for vision impairment. He didn’t complain and he did the best he could, but I struggled nonetheless.

In the beginning, I grieved all the precious little stuff, like walking down the street hand in hand; toward the end, I resented the endless caregiving. Some people say they like caregiving because it brings them closer to their loved one. I found it painful to watch one physical insult after another overtake my husband, to feel him become less of a companion and more of a dependent month after month.

For over a year after Tom’s death, I couldn’t look at photos of him in his sickness. He appeared so wizened, so unlike the sexy guy I had known. When he surfaced in my thoughts, all I could envision was the Parkinson’s, and I shoved the memory aside.

But now, 18 months since his death, something is beginning to change.

A friend told me that she experienced a similar loosening of feeling around 18 months after her mother died of Alzheimer’s. She said she could finally visualize the mother of her youth instead of the distant person she had nursed for years. I don’t know what has happened in my subconscious, but I’m glad to start rediscovering the vital man I loved.

A Friendly Ghost

I like peach preserves on my toast in the morning. When I reach for a knife to spread it these days, I stop my hand mid-air and reach for a spoon instead. I see Tom grinning at me and pointing out that jelly slides off a knife but stays in the bowl of a spoon, and you can use the back of the spoon to spread the stuff.

Something of an outsider for most of his life, he had fewer preconceptions than most people about how things should be done, and he was good at seeing past others’ preconceptions. He was much better at reading a room than I was; I was way better at working it.

Our biggest joint project was raising a son whom we uprooted at age 11 and moved to Phoenix, where parents enrolled their boys in kindergarten at age six, and where they played sports year-round. As a result, our son, who had started kindergarten at five, was smaller and less practiced than his classmates, and he felt disoriented.

At first, he withdrew into himself; then he flirted with being bad. Tom’s response was “benign neglect”: articulate your values and only act on the big stuff. I, on the other hand, looked for ways to intervene. My method paid off once when I forced our son to attend a summer program where he found his own strength. These days, I watch him parent his kids using both Tom’s techniques and mine. He’s a really good dad.

Timeline

Tom believed the key to marital success was giving. He used to say, “If each one gives 100%, then both get 200%.” The arithmetic doesn’t work, but the formula did for most of our 42-year marriage. In the first 12 years, he made the money and I worked part time while managing the household.

For the next 12 years, I had the big job and he retired and ran the household, even teaching himself to cook the kind of healthy meals I preferred. After I completed my work and our son completed his education, Tom and I each settled into a “second act.” I began to write and Tom went to graduate school to become a therapist. He thoroughly enjoyed his new gig until Parkinson’s stole it away.

Research on the physiology of grief shows that it affects body systems at the cellular level, altering cortisol production, sleep patterns, immune function, heart rate and blood pressure, and blood coagulation, especially in the early months after a loss. Widowers suffer a 40% greater chance of experiencing mortality in the first six months after their spouse’s death than married men. Although science hasn’t found patterns for the psychological duration of grief, it’s known that a surviving spouse is less likely to die in the 18 months following their partner’s death if they have used hospice care.

Anecdotal Evidence

My widowed friends resonate with the notion that grief alters 18 months after loss. One woman decided to sell her isolated house at the top of a hill and move into a condominium community where she would at least see people walking by. Her grief did not attenuate at 18 months, but she was able to make her next move. Another friend was finally able to begin therapy to get her life in order.

As for me, I have been experimenting with alternatives to a one-and-a-half fried egg breakfast: a one-egg omelet with fresh spinach, oatmeal with three kinds of seeds, and leftover lentils with parmesan cheese. I’m grateful for whatever is allowing me to visualize Tom teasing me in the kitchen rather than fumbling with his pills. Things are looking up.

Let’s Have a Conversation:

How long has it taken you to overcome the loss of a partner? Do you remember the good or the bad moments? What is your life like now?

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Stephanie Bryant

I was in a similar situation like you, but my husband has ALS and frontal lobe dementia. The differences he started being abusive, and I tried continuing to care for him, but it was affecting me physically and mentally after two years we finally split. I’m keeping him on my health insurance so he has the best care, but I have gone to noncommunicating. My youngest son, flits in and out of his handicapped accessible apartment and refuses to put him anywhere else where he needs to be. How do you grieve the loss of someone who still living? The shell of a man I used to know. I’m in trauma therapy now because the abuse still flashes in my mind. I’m trying to think about the man I had for 25 years, we were supposed to spend a lifetime together traveling, but at this point it’s really difficult to envision that man. He’s been out of the house nine months I’m hoping as time goes on, I can remember the man I married, and the good times we had over the trauma I endured.

Gayle

I lost my husband 5 years ago. It is still very painful, but I am learning to live with it. I am and have been very lonely, but have not found any of the men I have dated as possibilities for something more. I am getting resigned, accepting being alone with any artistic activities and friends and family surrounding me. But I miss a partner, especially my love of 30 years.

Susan Scott

15 months into widowhood and it is changing. The utter despair and anguish are over, but I’m not sure I will ever reach the “end” of grief or overcome the loss. I guess it depends on how you define those states of being. Have I learned to manage on my own and trust that I can make it? Yes. Have I moved beyond missing his presence or stopped crying? No. I firmly believe our mindset is 100% responsible for how well or how poorly we move on.I trust completely that my life still has a purpose and meaning, and I will find contentment in that purpose in time.

marti

Hi Susan…absolutely agree with you…I lost my husband to Dementia in Aug. of 2022…took care of him all by myself through covid…then i could do it no more…but deep down i know i did my best…it is difficult to go on…finding motivation is a big issue for me…and i can’t sleep at night as my mind can’t stop moving…i know its psychological…and like yourself…i am hoping to eventually go on…but the struggle is very real…we will always grieve

Kim Vestal

My mother passed 6 months ago. I was with her as she declined in a nursing home, then brought her home for hospice care for her final days which turned out to be a beautiful experience. I thought I was prepared for her death, but I got physically ill in the weeks after and was so surprised! A virus/rash condition that takes a few months to get over. Grief is A THING. You need to make room for it in your life, and you need to be patient during the process. Thank you for sharing.

Renee Langmuir

I lost my husband 42 years ago at the age of 29. The first few years were unimaginably difficult and parenting a toddler was almost impossible without the help of family. I have remarried, twice, and had another child, but that early experience as a young widow really defines me. I really believe a loving couple form one spiritual entity, which is broken upon the death of one partner. However, the love and tremendous influence of that spouse really is eternal.

The Author

Toward the end of her 40-year career as a creator of science museums, Sheila Grinell began a “second act” as a novelist. Her debut, Appetite, appeared in 2016, and her second novel, The Contract, in 2019. She writes a monthly newsletter and engages with readers on social media.

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